"OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | HI Fhdez
I think that there has to come a time when you have to trust 6,7 or 8 highly trained healthcare professionals and accept that you do not have oral cancer. There are certainly cases where the doctors miss a tumour but it's not usually when the person has seen upwards of half a dozen specialists - some of whom see lots of oral cancer patients. There needs to be a point where you have to believe them and try to settle down. Keep an eye on your lesion and if changes (as in doubles in size or changes colour or looks different to other parts of your tongue), then you can take yourself back to the doctor.
Remember this: oral cancer is quite rare and extremely rare in a 23 year old who has a very limited smoking history.
Just so that you know ... a doctor describing something as a lesion is healthcare professionalspeak for anything they can see that shouldn't normally be there (an abnormality or injury). Lumps are lesions and ulcers are lesions. So are gashes, cuts and tumours. It is a pointless word for a patient and as if you hear it, ask the doctor what they mean and ask them to describe it.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
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