Dave R

Sorry you had to join our club also. My personal advice is to avoid Erbitux (Cetuximab). I chose that instead of platinum based chemo and I am convinced that is the reason for my recurrence at the same site a year later. The gold standard, proven by clinical trials, is IMRT and platinum chemo; cisplatin (not as conclusive with carboplatin but good). Talk with your doctors,
Others will have opinions here also.
There is a clinical trial going on right now trying to find out if Erbitux (Cetuximab) is as effective as Cisplatin, but no results published.
As for the neck dissection, I'm confused. Did the Petscan show abnormal SUV in your lymph nodes. Whatever failures or false positives PETscan have, they have a great track record of showing whether or not the lymph nodes have cancer. The lymph nodes are important to your health. While everyone is excited to read that they had X amount of nodes taken out and none of them had cancer, what it means is they just had unnecessary surgery and removal of a major immune system defense.
Again, ask these questions to your doctors.
Charm


65 yr Old Frack
Stage IV BOT T3N2M0 HPV 16+
2007:72GY IMRT(40) 8 ERBITUX No PEG
2008:CANCER BACK Salvage Surgery
25GY-CyberKnife(5) 3 Carboplatin
Apaghia /G button
2012: CANCER BACK -left tonsilar fossa
40GY-CyberKnife(5) 3 Carboplatin

Passed away 4-29-13