Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Welcome aboard Dave.
I pretty new here too, just starting induction chemo next Monday. Sounds like you have a good team looking after you and up to date on trials and offering different options. That means they are thinking rather than just looking up standard of care.
I just posted in another thread what my surgeon said about trails but basically it boiled down to validate new therapies with less side effects than current standard of care protocols.
I did not give serious consideration to those options but if I were to explore them I would NOT subject myself to being a guinea pig in those studies. For example, I studied induction chemo sequential CRT. There is plenty of studies showing TPF is better than PF over standard CRT only. So why on earth would anyone want to subject themselves to the CRT only control arm? And since phase III trials need to be randomized I believe why gamble? Just my limited view of participating in trials in MY specific case.
Good luck, lots of good folks here and lots of good info.
Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com |