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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Wendy, I am so sorry to hear of Steve's problems with the surgery! This was the first I heard about what happened. I had been worried about Steve, knowing how serious his situation was. Im so sorry the surgery failed!!!! It is very rare what he is going thru. Only a handful of members have encountered this situation.
What you are describing is very similar to what happened to me. This is why I look the way I do, I am missing half of my lower jaw. You had just joined when I went thru this back in August 2009. I dont know exactly how many posts are still floating around of what I went thru but it was a very long difficult road. I was kept in a medically induced coma for 3 weeks in ICU then moved to the burn unit (for better observation) for another couple weeks. Since Steve had radiation, his healing may not be as fast as someone else. HBO could be part of the healing process. Eating isnt easy but it can be done. I am able to eat very few things with no teeth and only half a lower jaw. My speech is better than many OC patients, even without teeth. I am easily understood, even over the phone.
As far as his mental state goes, it will be a long road for him. This whole thing will be hard! Dont rush to give him info, let him ask you. There isnt much you can do but be there for him as much as you can. If the hospital has a therapist available I suggest trying to get them involved in time. Acceptance of his new normal will not come easily. Think of how many members consider themselves disfigured due to having a neck dissection scar or the 'shark bite' wrist flap. This is very different and cant be hidden as easily. Time will help him heal both physically and mentally. Sorry but this is one thing that Steve will need to tackle mostly by himself.
Im here for any questions you may have.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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