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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Audrey! Glad you have found this great site to help you. We can offer you tons of info and support. Its a good feeling knowing you arent in this alone. You have your own cheering section of fellow OC patients.
Try to stay busy to keep from worrying. Accepting the situation can be a hard one to manage but with time you can accept your illness. Eat everything you are able to now. Your sense of taste and swallowing function may be compromised for a while so eat now. Have a full blood count done including thyroid, get a hearing test and visit the dentist. Any questionable teeth need to be removed now and flouride trays need to be made. Lots to do to keep you busy preparing for the future treatments. Best to get these things done before the surgery.
Try to line up some helpers to drive you to your treatments. The American Cancer Society offers volunteer drivers, I occasionally will drive a patient. This can be a huge burden off a friend or relative who provides your transportation. When I went thru rads I used this service to help take the load off my son. Our trip was 45 minutes each way to the hospital. Living so far, I only had a driver about 3 times but it was a huge help.
Best wishes!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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