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| Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | Hi Audrey, Welcome on-board the OCF bus. You do have a great base of knowledge and experience to draw on. I had feeling the effects of the lags but was able to explain them away sufficiently to be bearable. What worked for me was to look at it from the providers standpoint with their calendars chock full every day morning to night and having to juggle schedules to get you in. no wonder why some days or even a week can go by between appts. time just adds up like that.
last friday i saw MO who finalized my induction chemo plan. after consult they said to wait outside for orders. this is late friday afternoon, i see staff leaving, some lights going dark. i am thinking WTH, did the forget me? after an inquiry - hey i am still, don't lock me in foe the weekend, nurse comes out and plops down next to me and shows this long list of orders and appts. all starting as early as next couple days. The light went on as it became clear real fast they had to juggle lots of schedules to get me to fit in. i was very grateful for all their diligence and hard work late on a friday night.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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