Lola, I am sorry to hear this. You are lucky that you have options for treating this. Get the scans done and you will then know what you are dealing with. Get yourself to a CCC and get a treatment plan from the tumour board. Then you can move forward and deal with this. I know the waiting is hard. Keep yourself busy and gather your support group around you.
Take care,
Tammy

Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!