Argh. Called yesterday to have the PEG pulled they said Jan 7. Granted the thing probably saved my life but I still hate the thing. I have not fed with it in 8 days. It's got to go.
They said they were booked with emergency cancer patient, Vac and holidays. I told them great, I am an emergency cancer patient on Vac thru the holidays. They did not find that funny.
Saw the ENT yesterday. He scoped me and said everything looks great. I even gained 3 lbs.
Anyway, Today is 5 weeks since last rad. Life is good. The only issue are sore throat while swallowing, dry mouth, very limited taste, and this hose coming out of my belly. I even resumed my hockey dad duties.
Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!
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