HD - know where you're coming from. I can remember furious bouts of coughing when tiny bits of water and such would go down the wrong pipe. And I doubtless had it easier than you since I went without a PEG and so was forcing myself to drink Ensure and water for months. I'm glad you're going to a swallow specialist. They are very helpful and will give you exercises to help strengthen your muscles and retrain them.

Keep us posted on your progress.

David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18