"Above & Beyond" Member (500+ posts) Joined: Sep 2009 Posts: 618 | Waldeau,
Help me out here. My tumor as a node that wrapped itself around my corotid. My only option was radiation. I want through 33 treatments of IMRT at the University of Michigan. They did not get all the cancer. This was my second round of radiation as I had it 2 years earlier for the primary tumor on my soft palet.
U of M said at the end of treatment that I could recieve no more radiation and I had about 9 moths to live.
I went to another institution and got trated with Cyberknife. I just got a PET 6 months out from treatment that showed I was CLEAR of cancer.
Was the information about the pulmanary node the trigger for your doctor to give you such grim news? Where is the Pulmanary node?
Are you willing to look at other treatment options?
Let us know. There are many here who have been told what you just heard and the doctors were wrong. Please forward more information regarding why your doctor feels this new information makes you terminal.
I say its not over till its over and it looks to me like you have time to find out if you have other options that will save your life.
I was told by three of the top cencer centers in the US that I was terminal. I am not terminal now as I found a fourth that could treat me to the point of a clear PET scan.
Kelly Male 48, SCC (Soft Palet) Rt., Stage 1, T3n0m0, Dx, 8-09, Start IMRT 35 9-2-09 end 10-21-09 04-20-10 NED 8-11 recurrence, node rt. neck N2b 10-11 33 IMRT w/chemo wkly 3-12-12 PET - residual cancer 4-12 5 treatments with Cyberknife & Erbitux 6-19-12 Pet scan CLEAR 12-3-12 PET - CLEAR
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