[quote=bethers0808]For the last week or so, I started getting these spasms, like a charlie horse, that are in my chin area, that feel like it is the bottom of my tongue, or maybe a muscle near the incision that they removed my lymph nodes from. I am thinking it is more the bottom of my tongue, but I am not sure. It has usually been doing this once a day, but today, I did an walking exercise dvd, and it did it for about 30 minutes after that, and now still hurts, but at least isn't spasming.
Has anyone else experienced this, or know of anyone else who has? I don't have insurance right now, but I finally got paperwork to do disability again, and may have medicare when that goes through, but so up in the air about everything I am not sure. I have been out of treatment since July 2010, and I don't know what is going on with this, but I don't like it. [/quote]

First, everyone should have regular massage for any muscles cramping like this for just comfort. Not deep tissue but Swedish massage works best. Find a massage school. I used one in KC and had weekly massages for $10. You can ask about advanced certifications and find someone certified in neuromuscular massage techniques or a chiropractor that utilizes ART and is certified. A good PT can do fascia massage using fascia cream a get it all loosened up for better blood flow but as soon as you get into a/c it usually seizes up. This is an issue that is lifelong but easily managed.

Second, technically you qualify for Medicare 24 months after your award date for disability. You should use your diagnosis date for the disability date. If you were on before it is a totally different process and even if you have passed your 48 month trial work period, there is a special process called EXR ( Expedited Reinstatement Process) that most local offices don't seem to know and if your refilling is because it is related to your original award, you will receive payment immediately while being processed. The process is designed to burn you out, deny you and make you go away. There are "specialists" to represent you and the govt pays for them for appeals, hearings, etc. and they are usually well connected with Administrative Hearing Officers/Judges, etc. I can give additional info on this if anyone wants to MSG me.

Managing symptoms is a lifelong process but without treatment that won't be long so understand there were no other options and work towards resolving issues. The Livestrong Foundation has a program in many places called Livestrong at the Y in partnership with the YMCA and you get a six week rebuilding regimen designed by Stanford that is a modified Pilates free for any cancer survivors and the trainers are certified in this. During this time your entire family gets a free membership as well. The classes are usually two times per week and you come prior to, work out and then do a group stretching/modified Pilates routine afterwards.

Not managing the fibrosis will cause you years of suffering as the muscles just glide. Find someone who understands scale ex in the neck. Those muscle groups can cause referred pain even in your feet. They need to be massaged out or disentangled if you will or you will have numbness and tingling somewhere.

I am a resource for all of the above unfortunately.

Be well but be diligent!

Ed