After tx (3mo) I had a PET/CT May 2012 it came back with a few hot spots but belived to be rad affexts. August 2012 I had a CT with contrast head/neck only, came back ned.

November CT neck only...clear, but onco / radiologist saw some stuff just in the left upper lung...so they did a full lung CT w contrast...onco thinks its infection....but I go back in 6 weeks for a rescan of lungs CT w/ contrast. I took Levaquinn for 7 days 500mg.

I also had a lung X-ray September 2012 due to cough, came back clear at that time.

I also had an MRI of the brain due to severe heaches in June 2012...came back clear.

The insurance company denied a PET this November (I understand why) but did approve the CT of neck only.

I get a monthly scope from my ENT (who is not affiliated with my onco, cancer center) and I also get a almost monthly scope from my onco.

I personally don't know what is normal care...I am however the "very engaged type, but always nice" and I ask for the monthly scope and the ENT has obliged so far.

I have just pulled my recoreds and will going to the UW/SCCA center in Seattle for an appt Dec. 13th bc I want follow up care and 2nd opinion on this lung thingy that is going on.

I do know there is a link (someone on here probably has it) National Cancer Institue has the guidelines for follow up care. To me they seem a bit weak...but that's me.