Thanks everyone.

Got back from the OC, he says I am doing well and wants to do the PET scan in 3 weeks. I am going to ask my ENT what he thinks about doing it then and ask my RO what he thinks. The OC said it is a little early to do the PET but he wants to see it.

On another note, he said that as soon as I get all my feedings via my mouth, then they will take the PEG out. I asked that if that meant that if I could eat a hamburger or were to do just the the Jevity by mouth (like I did before), does that count, and he said yes, if I can do the cans of Jevity by mouth that would be fine, because he said he wants the peg out too.

I am still not swallowing enough to drink that much, but that gives me an incentive to try to start drinking it a little now and then more and more. Jevity is not sweet and I don't think it will be too much of a burn, but, when I was drinking it, I liked to slam it down, so I didn't taste it too much. I guess I am saying that would be my goal, to try to kill a can (or 1/2 can) at a time, I can't see me sipping a whole can, then another, yuck!

Also, Question: They said to remove the PEG, they don't pull them out anymore, they cut it and push it down and it is eliminated via the bowels eventually... I was thinking obstruction, and I thought I might wanted it pulled out, but he seemed to think the new way is better. Any thoughts?


large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12