I am done over 3 weeks past treatment and feel weak, still use peg tube, mouth has been stringy saliva, but now getting dry.... goes from one the other.

I have noticed that people's breath all smell the same to me, just some are stronger than others, and it smells sort of like a cross between gasoline and garlic... Weird. And of course, lots of things do not smell the same. Some foods smell bad, some smell ok, very few smell like they are supposed to...
I know people have written a lot about taste changes and slowly returning, perhaps not all they way, but is the smelling sense connected to the taste or will it be separate? Will it return to somewhat normal? Before/After taste does?

I have learned a few things on this Peg feedings. I did try a small bite of chilli and a small drink of coke, but they both burned in my throat, I think tomato base burned and the sugar in the coke burned.. I am still on the peg tube doing all my Jevity and H2O via the tube. I am swallowing little bits of water though. (note- Last night my throat was hurting a little bit and when I went to bed, my throat started tickle Cough and I couldn't stay laying down, I got up after a few mins. and coughed up some wicked looking thing I thought was a round piece of plastic, but I guess it was some dead membrane from my tongue or throat. After that my throat did not hurt and I was not coughing). This morning, I noted I can drink water pretty good, so I am going to try some cream of wheat for lunch... Back to the PEG... One of my complaints about doing the jevity 1.5 feedings, is that it takes about 1 hour to do two cans. My boss at work said her Mother-in-law went thru this a few years ago (at 70 or so) and my boss said that I should cut the jevity with water.... I did not try that because I figured that if I added 8 oz of water to 8 oz of jevity it may be quicker, but it would be twice to go through the tube. Well I did try this, I put 2oz of warm water with 4oz of jevity, and Low and Behold, I did 2 cans in less than 20 mins. This is GREAT! Also I have noticed that the clamp on the tube, when I open it, still presses slightly on the tube, so I have taken a top of a pack of pentel machanical pencil lead pack and placed that between the ends of the open clamp and it allows fluid to go unrestricted. I also ware an under sized tee shirt to hold the peg tube against my stomach instead of tape, while I am moseying around the homestead.

I go for my 4 week OC checkup Monday, 11/13/12. I can tell I have lost a little weight, but not much I think. Last checkup was 194... (I started about 214) and should weigh 175, yes got/had the big belly...
Go to my ENT the week after that for 3rd month eval, and back to the RO the week after that..

My lovely bride has been rubbing the Aquaphor on my neck and cheeks and it has been helping a lot, think I may not look like a wrinklely old man after all... ( I will be 56 next month).

I want my peg tube out and to go back to work. Still like to take a cat nap now and then, hope this is not just a bad habit I picked up...

Praise the Lord!

Last edited by MickeyW; 11-10-2012 09:48 AM.

large lymph node Left Neck around May 22 2012
ENT June 6, did needle Biopsy - Negative
ENT CT scan July 9 - Negative
Remove lymph node July 26, DX - SSC - T1N2aM0
PET Aug 7, BOT
Aug 14, endoscopy, 1cm - clear margin HPV+
TX 33 IMRT - 6 Chemo - Taxol/Carboplatin
TX chemo 09/04/12 RAD 09/05/12