I agree with Cheryl, but unfortunately your story is all too familiar. Kevin found the lump in April and was diagnosed in mid July! We started induction chemo on July 25th. By then it was stage IV.
Just had our 1 year PET though and he's clear so far!!
Hang in there, but you are thinking correctly in my opinion. You have to advocate for yourself and try to get things going.
Kathy

Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14