Hi Ray,
We are about to start our treatment this MONDAY at Sloan and we can PM about it. In fact we are neighbors!
My husband was dx in 9/6 and after visiting Mayo, MD Anderson we chose Sloan. Being from LA we did not like UCLA. Our tumor is inoperable which means only chemo radiation. that helps narrow options. (but its better i think to be smaller and operable!) As you find out more you will see what options exist.
we are terrified also of what is to come and I have been taking to heart Christine's and David's advice about calorie intake and hydration!
In NY, Mt Sinai has a different approach than Sloan. I think they do induction and Sloan does concurrent. It's like the bloods vs the crips!
being a newbie I can only commiserate. The pros here know lots!
Hang in there. Take it One Day At A Time is my internal mantra.
Amber
Caregiver to 63 yr HPV+, BOT SCC, T2-3N2cM0,
Dx 9/6/12, Tx 10/12- 12/12,
Cisplatin x3, 35 x IMRT;
PET 12/15/12 Clean
PET 3/14/13 Clean
PET 9/17/13 removal of lymph node mediastinum bx HPV+,
10/13/13 SBRT 5x area around node
PET 1/6/14 -clean
CT 6/14 -suspicious
CT 11/14 - 5 spots confirmed
12/14- chemo
CT 1/15 -stable
CT 3/15 -chemo ended; mixed results. Some spots better but new one appeared also in left pleura
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