Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | If the David you refer to is me then your correct in suspecting how I feel. With HPV+ SCC more doctors are now realizing the importance of the cancers' improved response to the radiation and chemo relative to HPV- SCC. There are many that would like to reduce the radiation by performing surgery first but that has yet to be tested so now we are left with the full amount of radiation. Even 6 years ago Moffitt told me that they would not do a ND because the radiation/chemo would do the trick. I don't even know why they/you are trying to remove the Primary? If I were you I would sit down with U of M and listen and then I would also question JH why the need for surgery with a HPV+ finding when you are getting chemo/rad? JM2&3C's
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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