Karen- I am in 100% agreement about getting that second opinion. I know it feels like you're using up even more time when you feel you could actually be Doing Something, but in the long run, you don't want to look back and say 'what if".
And remember, ultimately what you do is your decision. You just want to make sure that the decision you make regarding any treatment is an informed one.
Best of luck to you!
Lyn

Stage 4: Mid-line BOT primary; Left Lymph Node 4-5cm HPV+
Chemo/Rad 10/08/12; 3 big doses cisplatin
Updated 10/16 refusing Cisplatin; due to side effects
Considering Carboplatin; discussing with doctors.
Corp. Trainer- South New Jersey
Life is What Happens When You're Busy Making Other Plans.