Hi, Everyone.

I was told last Monday that I will be getting a PEG place "in a couple of weeks", meaning that the RN has to book the procedure and go through all of the insurance hoops to do so.

Now, almost a week later, I am having quite a difficult time swallowing and have a good deal of mucuositis. I can barely get down 2 Boosts today and a 20 bottle of water. I KNOW this isn't good, I just don't know what to do. I'm seeing my RO tomorrow for my regular check ups. I'm swishing, rinsing, spitting, magic-mouth-washing, and the whole bit. I have been keeping up with my pain meds.

I just don't know how long I can go on like this.

Kerri

37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!