 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Denise, at this time you will want to eat everything you can and then have seconds. Dont worry about gaining a couple pounds, your metabolism right now is burning calories rapidly. One things you mentioned above is its ok to lose weight. The goal during this is to lose NO weight at all but thats pretty hard to do. When you are losing weight during treatment, its muscle not the extra weight. I too thought 'its ok to lose weight' and that landed me in the hospital for malnutrition and dehydration. It seems like 3000 daily calories is too much but your body is burning calories at such a rate that even if you would take in more than that you would not gain weight.
Even with the PEG site you will want to keep eating and swallowing every day even if it hurts. Your sense of taste will change and the delicious soup you might want to eat early in your treatments.
Best wishes!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
