I feel I did not give enough info after reading your posts. I am a newbie, so I will do my best.

Diagnosed July 2009 at 43. Had Partial glosectomy. Six month later after PET scan another partial glosectomy January 2010 resulting in half my tongue removed. Numbness and no feeling on right side of tongue and mouth. Constant pain that does not let up and makes eating difficult. Many nasal and feeding tubes resulting in large weigh loss and constant battle to keep weight on. All the surgeries and meds caused the damage of the nerve the controls your stomach to contract resulting in severe gastropharisis and allergic to the only meds that help. Suffer from debilitating nausea and inject Zofran at least 4 times daily to be able to function. My last PEG got dislodged and nicked a blood vessel and my entire abdomen filled with blood and almost died. Spent 6 days in the hospital in September 2011. Currently my voice left 10 days ago and back at the Oncologist. Had a scope and biopsy and another PET on this coming Monday. Try to do all I can to educate others and volunteer when I am well enough. I try hard not to give in to the chronic illness and be as productive as I can. I work with new cancer patients and try to help them and give them through the initial diagnosis process. That is my story. Paula Foster