Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Shhhhh...don't tell anyone! I did go through a rough early adulthood. I remember coming home one day and my mother had moved out. I plunged into retreat, got into the drug scene and bailed out of society. My parents argued a lot over who I should live with and I just kept running away until they stopped looking for me. I have pretty much been on my own since around 15-16 and I certainly learned from the school of hard knocks. It took a few significant events to get me back on track. I have no regrets other than not taking my mother back to Japan when she was alive. I had an enormous feeling of guilt when the plane landed and I had her tucked under my arm in an urn. I was quite ashamed to realize I had made plenty of money and could have easily afforded to take her to Japan once a year for the past 15 years but my selfishness didn't allow it. When she was diagnosed terminal in March of 2000 I pretty much put my life on hold and took care of her 24-7. It was very stressful but I could not see putting her in a nursing home. She had multiple brain mets and was riddled with mets from ovarian cancer. Her 4 weeks lasted for 9 months and I still haven't found a regular job.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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