 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Sabrina!
First, I am not female and I am 48 (as of April 7). I want you to know how sorry I am that you had to join this club. We have all been through a lot and I know there are ways many of us can help you. For instance, I was blessed with skin as soft as a baby's butt. I am half Japanese and all my life everyone has always commented about my skin. Even the radiation oncologist staff were in awe how my skin recovered from the radiation burns. There was a point about half way through my treatment that my neck turned to a bloody, oozing mess. I managed to nurse it back and today I only have a brown overtone across my jaw and half of my neck. I can't really bond with you and share tender moments from a woman's perspective, but I could offer a few tips on keeping the skin soft and supple. If you have any questions or even just want to bounce something off of someone, feel free to private message me or post and you will receive a plethora of answers to any questions you may have.
I wish you the best and I admire your strength already!
God Bless.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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