 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Alicia,
Welcome to the OFC. We are sorry that you have to be here but this site will be a blessing to both of you.
I will try and answer your questions but without knowning more about his Primary and his nodal invlovement it's really hard to do.
1. Ask you RO about the TMN and his staging could either be a III or a IV.
2. He's already had surgery and with nodes involved they will probably recommend concurrent chemo/radiation.
All the rest depends on the Tx selected so we can address that later on.
I would suggest fattening him up as much as possible beginning ASAP. He also needs to see a dentist who is familiar with oral cancer. He will have to have blood work and make sure they test his TSH levels and record that number for possible future use.
His main doc who will be whomever his treatment facility labels as such. For me it was my RO with their ENT as a close second and of course my MO called the shots on my chemo so I really had 3 to call upon depending uopn my concern/question.
Get back to us after the path report and take notes and ask all the questions you want when you meet with the doc going over that report starting with the above list.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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