 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hello justlilomee. Welcome and you are right, this site is so awesome. Many kudos to all of you that make it happen!
Give yourself peace of mind and get as many opinions from cancer specialists that you need. There is a very high rate of complete survival if caught early and many complications if not with many not surviving. It is your life, not theirs and nobody has your interests in mind quite the way you do. They should at least do chest xrays, an MRI or CAT scan with contrast or a PET/CT scan. Consult with someone that deals with this every day instead of you guiding them. Good luck and as Jimmy V said, NEVER GIVE UP!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| 
