Senior Member (100+ posts) Joined: Feb 2011 Posts: 117 | Hi P, it's me... from CSN. You are doing so GREAT and have the best attitude about all this. You are mid-way thru week 3 (I think) and sounds like you have everything organized in case you need them later. Good idea to "practice" with the tube, rather than wait until you can't eat so well and then have to do a quick lesson. I was lucky also to have the best hubby in the world as my nurse. There were days that I could barely get out of bed, let alone drive myself to treatments. I had great neighbors who cooked for hubby so he could care for me. Wishing you an easy ride for the rest of your journey.
DX 12/6/10 of T3 SCC Tongue. Surgery 1/3/11 was hemigloss & forearm free flap, midline mandibulectomy, Neck Disection-All nodes clear. Ended rads 5/11/11. Taste buds back to about 80%. PEG removed 4/5/12, experimenting eating real food again. If I can do this, so can you !! Stay Strong.
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