I agree...You need an MRI, not an Ultrasound. Not a Dr though, but....feel like some of us could be close sometimes!! LOL...Really, you HAVE to say I need it now. Be persistent and remember that this is your LIFE you are fighting for. It is very aggressive and needs to be caught above your collar bone. At least that's what we were told. The Dr's had played around with us so long that when we saw the oncologist for the first time he was really ticked. He literally said "where the hell have you been? You had your first T on June 3rd and I am seeing you on July 23rd?" I told him that we had been following protocol. He caught the sarcasm and said "well, I hoped you haven't followed protocol right into an incurable situation. If this is in your lungs, it's game over." Kevin said "game over like I'm gonna die?" Doc said "game over as in I will not be able to cure you." We panicked until after the high resolution CT of his chest, which thank goodness came back clear. Another couple of weeks and we would not have been playing the same game we are playing. It had traveled soooo fast in the month and a half they dinked around. DON'T procrastinate with this!!!! Yes, I'm yelling!!! But only cuz' I care!! ;o)
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14