"Above & Beyond" Member (500+ posts) Joined: Jul 2011 Posts: 945 | reverie wrote:
"I thought about taking medical literature from this site but was advised against that. I didn't have this problem at Hopkins because they were already well-versed on the latest."
I had a notebook with my questions. I printed the appliable pages of the NCCN Guidelines. If I were doing this again (and I sincerely hope I will not!) I would also include a calendar for planning purposes and appointments.
ChristineB collects everyone's card and attaches them to the notebook.
If you have your questions written down (and room to write down the answers) you will be - and look - more professional. The NCCN Guidelines got me instant credibility with the MO and ENT.
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker First symptoms 7/2010, DX 12/2010 TX 40 IRMT (1.8 gy) + 10 Cetuximab PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
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