Hi,
I am not sure you have been getting the best advice. Biopsy or fine needle biopsy is the only way to know. Yes it is invasive, that's why they do not like to jump into it, but it seems to me you are at that point. I agree with everyone else who has posted. You need to get with the experts. Moffitt in Tampa is highly recommended. Christine is right; you are not too young for this. It is highly important.
Best,
Anne


SCC tongue 9/2010, excised w/clear margins:8 X 4 mm, 1 mm deep
Neck Met, 10/2010, 1 cm lymph node; 12/21/'10: Neck Diss 30 nodes, 29 clear, micro ECE node, part tongue gloss, no residual scc
IMRT & 6 cisplatin 1/20/11-2/28/11 at MDA
GIST tumor sarcoma, removed 9/2011, no chemo needed
Clear on both counts as of Fall, 2021