| Joined: Jun 2010 Posts: 153 "OCF Canuck, across the pond" Senior Member (100+ posts) | "OCF Canuck, across the pond" Senior Member (100+ posts) Joined: Jun 2010 Posts: 153 | Fascinating thread. To the original poster, I fear your questions may have been somewhat lost in the discussion here. Be patient. Clearly these hyper-sensitivities, whatever the cause, are not uncommon in this challenging context. Don't take it personally. Also, every treatment, and every reaction, is different.
I'm about two years out from my chemo-radiation treatment, went through loss of sweet, then loss of taste-in-general, but never lost my sense of smell. I didn't *notice* an enhancement of smell, but my wife tells me I smell everything before eating it now. I don't feel this is new, but she says so, and perhaps I'm just "testing" for spice levels, since my poor scar-tissue mouth could NOT handle spice for a long time. Most of my taste has returned, I can handle "medium" spice, and my saliva function is about 65% (guessing). I also did go through a period of hyperacusis (greatly increased sensitivity to clanging noises......most annoying), but this, too, has passed. Aside from the dry mouth, my long list of side effects has generally faded away (yay).
Ah, one that stumped my Oncologist was that foods such as pasta sauce would trigger my neck muscles to spasm and cramp.........this was a new one to him!
Wishing everyone going through this, as patient or carer, patience, strength, hope and good support. It can be an incredibly challenging time, and I encourage you to gather as much support as you can. If you don't need it, bonus, but if you do, it's best to have it ready and waiting in the wings.
Last point; for me one of the worst parts was some very bad psychological reactions to the cocktail of drugs used to manage the treatment - whether it was the Fentanyl (an opiate) or the steroids (got the blame from the docs) I'll never know, but for those with sensitivity to drugs, beware! And good luck.
47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014. Sadly has passed away, notified Jan 2015.
| | |
Entire Thread
|
Intensified sensitivity to smell, people's breath
| terrib | 04-07-2012 04:35 PM |
Re: Intensified sensitivity to smell, people's breath
| Anne-Marie | 04-07-2012 10:48 PM |
Re: Intensified sensitivity to smell, people's breath
| klo | 04-08-2012 12:06 AM |
Re: Intensified sensitivity to smell, people's breath
| ChristineB | 04-08-2012 12:07 AM |
Re: Intensified sensitivity to smell, people's breath
| klo | 04-08-2012 12:13 AM |
Re: Intensified sensitivity to smell, people's breath
| klo | 04-08-2012 12:55 AM |
Re: Intensified sensitivity to smell, people's breath
| Anne-Marie | 04-08-2012 02:13 AM |
Re: Intensified sensitivity to smell, people's breath
| Kerri | 04-08-2012 03:00 AM |
Re: Intensified sensitivity to smell, people's breath
| Anne-Marie | 04-08-2012 12:30 PM |
Re: Intensified sensitivity to smell, people's breath
| Charm2017 | 04-08-2012 02:21 PM |
Re: Intensified sensitivity to smell, people's breath
| zengalib | 04-08-2012 07:34 PM |
Re: Intensified sensitivity to smell, people's breath
| klo | 04-09-2012 12:51 AM |
Re: Intensified sensitivity to smell, people's breath
| MissBazinet | 04-09-2012 08:09 PM |
Re: Intensified sensitivity to smell, people's breath
| ChristineB | 04-09-2012 10:02 PM |
Re: Intensified sensitivity to smell, people's breath
| mick | 04-10-2012 03:53 AM |
Re: Intensified sensitivity to smell, people's breath
| klo | 04-10-2012 12:03 PM |
Re: Intensified sensitivity to smell, people's breath
| julieann | 04-10-2012 04:54 PM |
Re: Intensified sensitivity to smell, people's breath
| Simple Gifts | 04-11-2012 10:29 PM |
Re: Intensified sensitivity to smell, people's breath
| Stily1 | 04-23-2012 04:39 AM | |
Forums23 Topics18,248 Posts197,133 Members13,320 | Most Online1,788 Jan 23rd, 2025 | | | |