OP "OCF Down Under" "Above & Beyond" Member (500+ posts) Joined: May 2010 Posts: 638 | Until I found this forum (thanks again Gabe), I was under the impression that Alex was having some peculiar reactions to treatment. A large part of the road to recovery, has been the knowledge that Alex's side effects, and reactions to the situation were normal!!! Once we knew we were normal we could stop wasting our energy beating ourselves(and each other) up and start trying the solutions offered on this website. Even when there were no solutions, just knowing that others had been there before us and got through it went such a long way towards acceptance of the road ahead.
I feel sorry for the people who don't have this support who are allowed to think they are weak, or peculiar or alone.
One of the couples that Alex and I went through with was Dave and Judy. I saw them bickering the same way Alex and I were and the last time I saw them it was clear they were in trouble by the way her jaw was so tightly clenched. I gave Judy my card and asked her to give me a call if she needed to. She never did and I don't know what happened to them. I wish now I had asked for her number rather than given her mine. At least I could have pointed her here and she might have discovered others who understood exactly what they were going through and could have helped.
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
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