Dragan... sorry to hear all you are going through... do you mind if I print off your post and show it to my surgeon? He is the top in his field here in Toronto, and the head of surgical oncology and ENT at Princess Margaret, and Toronto General, and Toronto Western he is a pioneer in his field... maybe he has some suggestions? I am sure the ear pain is nerve related... if they can't remove the bone can they maybe deaden the nerve? Botox? Perhaps that will resolve some of your issues? And I give you permission to smack the next dr. who belittles your issues... hugs.