Wayne, I am so sorry to read your post! I know your story and how recently your health has become a problem. I can identify with what you are going thru on a daily basis. My situation is no where close to what you have going on but I do empathize with what you face daily. I also have alot of pain but in comparison to what you describe I feel like I am one of the lucky ones. Your pain must be off the charts. It might help you to be on the fentanyl patch with just taking extra meds for break thru pain.

With my mandibulectomy in 2009 came a whole list of after effects. The surgery failed and my body rejected the titanium jaw. I ended up having a second mandibulectomy done while I was kept asleep for 3 weeks. I am now disfigured and have several other issues. This is why I can say I understand all too well whats happening with you. The recovery took me over a year to almost bounce back from everything and that was with the help of HBO and 8 months of IV antibiotics.

I dont know what to tell you as far as what your next move could be. I would do exactly what you are by trying to find another top rated center where they may give you better odds at having a successful surgery. My heart goes out to you. I will keep you in my prayers for there to be some way to fix this. I know it doesnt change things but I am very very sorry!

(((HUGS)))