Hi D:
I can so identify with what you're going through. For the past two years, I have been battling one doctor after the other trying to get relief for problems I am having, that may, or may not even be associated with after-radiation effects (it's been 4 years since my treatments), BUT, once the doctors find out I had radiation/chemo to my head/neck areas, and they can't "SEE" something causing my problems, they all resort to the "late radiation effects," and just say "deal with it." Heck, my symptoms are sickening and I feel they are not all associated to the radiation, but try to tell a doctor that crazy. I wish you all the luck in the world and pray you can find a solution - guess what we have to do is keep searching, and never, ever give up. I've even had doctor's "cancel" their appointments with me and that's pretty sick, isn't it? Now, I'm going to another state in hopes I can find a doctor willing to take the time to evaluate my symptoms and at least try to find a solution. I'll be thinking about you - just wanted to let you know you are not alone in your quest for a solution.
julieann


Julieann
Nov 2007 SCC on right tonsil following tonsillectomy. Was smoker, QUIT. (Stage IV T2 N2b) 7 weeks radiation one day/wk chemo (carboplatin and 5-FU). Allergic to Taxol; PEG in, lost 30 lbs. TX completed January 2008. PEG out mid- 2008. PET/CT 1/17/2011;2/3/12 NEGATIVE for cancer smile