Hi Christine, from one caregiver to another, we have lots of similarities. My husband had cancer of the uvula 2.5 years ago. Had the soft palate removed (liquids refluxing & nasal voice - see pics of his prosthesis on our website in sig file). He had a radical neck dissection and radiation. All checkups were going fine until they noticed one lymph node on the non-surgical side had grown. Biopsy showed two nodes positive for SCC and so he is currently undergoing IMRT (more radiation but targeted) as well as chemo. They told us "incurable, inoperable".

How do I stay positive? I'm not sure. I think it's because I know I have to, especially for his sake. Being positive keeps us both going. I also have a HUGE online support system.

If I can recommend one book it's: Love is a Journey: Couples Facing Cancer, and it is available through Amazon

Feel free to email anytime!

Donna


Our Story: http://hncancer.com
Husband: Mike, age 62
SCC soft palate, Stage IVa, [T2 N2c M0]
Diagnosed 4/16/01, Palatectomy, Partial Pharyngectomy, Comprehensive
Radical Left Neck Dissection 7/25/01, 30 Radiation treatments 9/10/01,
Recurrent SCC Right Lymph Nodes 11/6/03, starting IMRT 12/29/03 & Cisplatin 12/30/03