Platinum Member (300+ posts) Joined: Nov 2009 Posts: 493 | I guess I also have to think that people are only trying to express their concern, and don't really know how. I have a very good friend that always just says "I've been thinking of you." which really covers a lot. I believe that people care and want to say something. I was pretty upbeat before I had my surgery and my treatments, but it might have been because I was pretty clueless. My doctors all tried to prepare me, but I still had no idea what it would be like until I actually went through it. One man who is a member of our church, told my husband, "I am praying for Georgi, and I don't pray for everybody!". I loved that!
Female, nonsmoker, 70, diag. 5/09 after tongue biopsy: stage IV. Left hemi-gloss. and left selec. neck disec. 30 lymph nodes removed May 20. Over 7 weeks daily rads. with three chemo. PEG removed 12/4/09 Am eating mostly soft foods. Back to work 11/09 Retired 4/1/11. 7 clear scans! Port out 9/11. 2/13. It's back: base of tongue, very invasive surgery involving lifestyle changes. 2/14: Now speaking w/Passey-Muir valve. Considering a swallow study. Grateful to be alive.
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