Hi Annie,
My husband was also diagnosed with SCC that was HPV+. The prognosis is actually better with HPV related SCC, but there IS usually chemo and radiation involved. We had a ton of both. Our first follow up ct was clear and he was stage IV. We had a PET scan on the 12th and will get the results tomorrow. Praying for clear!!
I am SO glad you are going to a major cancer center. This cancer is VERY aggressive and moves quickly. Don't hesitate to do the chemo and radiation. Just because they took the tumor and it had clear margins doesn't mean there aren't tiny cells in there. Not to scare you, but kill it all baby!!
One other thought. Since you have OC and it's HPV related, I hope you are faithful doing your pap smears. It is a sexually transmitted disease and oral sex seems to be the primary way to contract it when it involves oral cancer. Kevin had oc and I now have had abnormal paps which are HPV related. I am on a follow up next month and may be needing a hysterectomy as cervical cancer is almost ALWAYS caused by HPV. My husband's ex had it 17 years ago. I guess the crap hangs on for years!! Just FYI.
Keep in touch with us as things happen!!
Blessings,
Kathy