Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Im so sorry Jerry has begun to feel lousy. At least he is almost finished so only a few more weeks before he will begin to feel a little better.
A couple things in your post caught my attention...
The fentanyl pain patch takes up to 24 hours to kick in. If its been past 24 hours and Jerry has not felt any relief, call the doc and tell them you need a stronger patch. A starter dose should be 25 or 50 mg, if it doesnt work its ok to increase it. The fentanyl patch can go up to 150mg which is the highest most people take. Be careful with them! Read all instructions and follow them to a T! No hot showers or baths, never cut or fold the patches. If those things occur it could lead to an overdose of the medication. Being in pain does NOT help the patient.
I know it hurts to swallow, but Jerry must continue to take small sips of water a few times a day. He will have bigger problems later if he doesnt keep those muscles active.
Nutrition is the key to thins whole thing. Push to get him to take in a minimum of 2500 calories every single day. Water should be not a drop less than 48oz per day. If possible shoot for higher on both things, like 3500 calories and 64 oz water daily. This will make a huge difference in how Jerry feels. If he doesnt get enough even for one day it cant be made up for on the next day. If he doesnt get enough on a regular basis, he will need to get an hydration IV at the hospital or could be hospitalized for malnutrition and dehydration. Thats how important this is. I ended up being hospitalized a couple times for this so I know what Im talking about.
I wish you both the very best with everything. Please keep us posted and if you have questions, we are here for you. Good luck!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |