Keep hanging in there, you beautiful caregivers!!! Oh, they do sound convincing in their discomfort, poor guys! It's hard to be the meanie while feeling awful about what they are going through.
Gayle, you are wise to hold strong when it comes to following instructions. Getting nourishment and fluids can be particularly challenging. They were major points of contention here and landed J in the hospital for four days.
I hope the feeding tube works well for Jerry. I would think that keeping fed and hydrated would go a long way in making the rest of it a little easier to handle. Even with a feeding tube, he can (and should) take whatever he can tolerate by mouth, even if it is just water. That way, he'll preserve the swallowing mechanism.
Sometimes, they forget we're on their side. So, every now and then, a little reminder is in order. It's not an easy rollercoaster ride for either of you. You are doing a great job! Keep moving forward!
Remember to take a little time for yourself. Try to get some quality rest when you can. Your incredible husband has an incredible wife!
Sandy
xoxox
Last edited by Sandy177; 11-30-2011 10:47 PM.