 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Brendan, I am so sorry to read of your struggles! Im sure there have been others who have gone thru this. Off the top of my head I cant name them right now. Do the very best you can to get thru the day. Im sure your wife and child are grateful for the time they spend with you. Im sure the Florida trip will give you all many happy memories of a time when you were feeling better.
The only thing I can suggest to to make a list and speak with your doctor in detail about everything you have expressed here. Talk with them honestly and let them know how uncomfortable you are. Maybe they will be able to give you some meds to help with the brutal side effects. I know rinsing your mouth with 16oz of warm water, 2 tsp baking soda and if tolerated 2 tsp salt will help with the sores. Ask your doc for magic mouthwash, that will numb your mouth for about 15 minutes so you can have some relief.
I wish you all the best with everything you are going thru.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
