"OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Please don't give up. I know it's hard as hell. But unless they tell you you're terminal. As in... It's everywhere - then its still local metastacies. My one concern is you're only getting chemo which won't cure it as far as I know - did they not consider salvage surgery - and then rads again? Several people here have had cancer 3 times and are still alive - charm had rads 2x - and hit his year 3 cancer free!!! I know time with your child and wife is precious - and you don't want to be sick all the time but - youre still holding onto the negativity one dr. threw your way, despite the fact that he has no way of knowing the future for you or any of his patients. His experience may tell him one thing but there are people very day who buck the odds an leave drs. scratching their heads. This could very well be you. You may have to have surgery and rads again, and may have to have dinner from a peg for the rest of your life, (i know thats hard when most social evensts are all about food, and so is much of our day but it really is only one element) but you could have a "the rest of your life" to spend with your family... If you continue - likely not if you dont - So some rough times now but for the chance at a future? Is it not worth it? I know it's a hard decision, and devastatingly difficult to go though treatment again and far be it for me to tell you what to do but as I see it - there are a whole bunch of people here despite the odds... So....
Hugs, take care, and we are here for you no matter what you decide.
Last edited by Cheryld; 02-27-2012 10:03 AM.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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