Bobbie,
Fortunately or unfortunately we head and neck cancer folks are a small group compared to, say, prostate or breast cancer and it is hard to find support groups. A local guy in my town tried to run a SPHONC support group but gave it up due to lack of interest. I had to settle for a men's only group that had mostly issues that were quite different from mine. The best support that I was able to find was right here.

Regarding swallowing. Not only could I not swallow for months, I also wore a pain patch 24/7 for months. If your throat is hurting too much you should definitely contact your doctor and see about pain management either through a skin patch or by shooting liquid or dissolved hydrocodone through your feeding tube. I know of no medication to stop the mucous, but in time it goes away. I had a Yankauer suction machine that I kept by the easy chair and bed at night and it was an improvement over just using tissue.
Hang in there, things will get better.

Danny G.


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.