Hi Bobbie, I my case is similar to yours, except
they never found the primary cancer site.
I could start to swallow food at 8 weeks post
radiation, and the taste went from horrible to no
taste at all. I had the PEG removed then, but
should have left it in a bit longer. I could
eat Cherrios and soup, but it took awhile.
The mucousitis started to go away by then, but
was still a problem for about 6 months.
Once the mucous went away, the dry mouth set in.
Now I carry a water bottle everywhere, instead of
a box of Kleenex.
As for taste, at about 4 months I could start
to taste again, but it would go away after a
few bites. Little by little, that got better.
Now I can taste everything, even though it's
a little weak. I can't eat fruits (taste bad),
but I can eat spicy food. This thing seems to
affect people differently. I went to one of
those buffet restaurants and tried a little of everything.
Then I loaded up on stuff that tasted good to me.

I don't know of any support groups in your area,
but hopefully somebody on the board will be
able to help. Don't dwell on the side effects,
just look for ways around them. Hope you recover
soon...O-O