Thanks for the information, guys.

I don't like the description of living with a PEG, but mostly I am physically and emotionally disgusted by the idea of getting a PEG. I don't know if I understand and could explain why I feel like I desperately don't want it. I will do it anyway if and when I find I am unable to swallow proper nutrition, but I want to try to get by without a PEG.

Is that possible? What's the procedure of getting a PEG like? How much risk will I be taking by saying no to the PEG until after I've cried "uncle"? Can they just pop one in the day after I say I can't swallow my nutrition and I need the PEG?

Last edited by AvatarMN; 01-28-2012 06:32 PM.
-Ben-
Diag 12/21/11
T3N2bMX
Surg 1/17
5cm tumor left tongue pos. L tonsil neg. 17 l. neck lymph nodes, 2 pos w/extranodal excursion. 4 teeth neg
Tongue spec 5.9x3x1.8cm. Margins clear to 0.4-0.5 cm
2/20-3/27 27 radiation, 2/20-4/12 3 chemo.
Non HPV, lifetime tobacco, drugs, alcohol teetotaler