Colleen, I'm so sorry to read about all you're going through. But you're very brave, and you're asking great questions. You've also gotten equally good answers from some of the most knowledgeable people here.

I was frankly shocked reading about how your RO abandoned you. For shame. And I don't often use that word, but in this case can't think of another better one. I hope you can find other doctors, especially an ENT who knows his or her way around oral cancer.

Mainly I'm just adding my support. Keep writing here, let us know how you're doing. We're all with you.