Hi, Colleen,

I agree with Christine. I want to add that your health is the most important thing now. I am guessing that HR will accommodate your treatment schedule. You cannot be fired for having had cancer or for pursuing the necessary treatments to support your health. You might consider arranging a meeting with your HR rep and get him/her up to date on your appointments.

Healing is a big issue post radiation. My husband also had osteoradionecrosis (ORN). It is serious and requires medical attention. My husband had a mandibulectomy to correct his issues along with HBO. While he was in the chamber he watched movies and took naps.

I also believe that an ENT with experience with head and neck cancers is crucial. Even if you have to travel further to see one, you'll have confidence in your care. Maybe, the new ENT can refer you to a more local ENT who can follow you but be in touch with the cancer expert as needed.

My husband sees his ENT twice a year and his plastic surgeon three times a year. He has had numerous plastics surgeries.

Is there anyone who can go with you to your appointments? I know the weather up there can be brutal this time of year. We have family in Syracuse and boy, do they get a lot of snow!

All my best to you, and good luck with the new ENT!
Anita


Anita (68)
CG to husband, Clark, 79,
DX SCC 11/07, T4N0Mx, PEG 1/08, RAD, post rad infection 3/08,
HBOT 40 dives, ORN, Surg 11/09 mandibulectomy w/fibular graft.
Plastic Surg 4/10, 12/10, 3/11, 10/11, 4/12, 10/12. All PETS clear,
PEG out 1/11. 6/11 non union jaw fracture
Fractured jaw w/surgery 7/14
Aspiration pneumonia 7/21, 10/22
PEG 7/21
Botox injections