Hey, Kelley
Mark's neurologist is going to be severely annoyed at the GP. Maybe find a new GP.

One thing to remember is to always get copies of your test results. If your neurologist is not in the same system as the oncology stuff (so she can easily review Mark's records online), go ahead and collect everything you can to bring to the neurologist appoinment. Put it all in a notebook, along with your questions. AND the NCCN guidelines that Christine mentioned.

If Mark's neurologist is anything like my riding buddy neurologist (your basic spitfire) she will shake things up and get to the bottom of it.

If you have any other oncology meetings, bring the notebook. It adds credibilty. Best wishes.

Last edited by Maria; 01-19-2012 10:19 AM. Reason: typos

CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.