 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Kelley, I hope the convulsions turn out to be nothing serious. Im sorry but I havent heard of others with this problem. I am surprised that a PET scan has not been done yet. The very best place to go for treatment is a large cancer center where they treat many cases of oral cancer per year. It doesnt sound like where your husband was treated is following the guidelines for oral cancer treatment. Im very glad you have found OCF to help you with info.
If you need further info on cancer centers let me know or it is listed on the main OCF pages. There is also links for NCI guidelines there as well.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
