Thank you Cheryl & Maria=)

I will insist on a PET Scan... The doctors gave us such little information prior to all this. Mark's oncologist said "I need to see you once a month for the first year following TX." On his 3rd month F/U he changed it to once every two months. Oh so frustrating! It was hell just getting a doctor to care, one even said that his throat pain was from his bad posture.

Thank you for ALL the information!

I got a specialist appointment for the end of the month with a neurologist. Mark has seen her before, but she did not know that he was continuing to have seizures/convulsions; his primary care MD said they were communicating UGH!

Keeping the Faith,
Kelley

PS: Not one MD EVER mentioned a PET Scan.