Time for an update. For whatever reason(s) my "black furry tongue" problem has mostly resolved now, about 20 months since the end of my primary treatment. Perhaps my salivary function has returned enough? I can't say for certain.

Otherwise I'm doing quite well. Getting more and more fit, working, travelling. Dry mouth is a minor nuisance. Neck muscle cramping is.....a minor nuisance. Otherwise all systems are "go".

Cheers,

-Seth in London

47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.